International FOP Association: Community Fundraising Manager

International FOP Association: Community Fundraising Manager

10:32 28 June in KC IABC Blog, KC/IABC Job Bank for Members

The IFOPA does not have a physical office. Since we serve the FOP community around the world virtually, we operate virtually with staff and consultants currently located in Kansas City, Mo., and Boston, Mass. The ideal candidate for this position could be located anywhere in the United States.

The International Fibrodysplasia Ossificans Progressiva Association (IFOPA) is an international nonprofit organization fostering medical research and providing education and support for those afflicted by the rare genetic condition fibrodysplasia ossificans progressiva (FOP). The IFOPA’s mission is to fund research to find a cure for FOP while supporting, connecting and advocating for individuals with FOP and their families, and raising awareness worldwide. A volunteer board of directors, which may range in number from 9 to 15, most of whom have FOP or a child/grandchild with FOP, governs the IFOPA. We hold ourselves accountable to the FOP community. As an organization, we work closely with patients and families, national FOP organizations, leading clinicians, scientists and drug developers.

Position Overview

The IFOPA is seeking a highly motivated and passionate individual with interest and experience in serving a nonprofit organization. The Community Fundraising Manager serves FOP families, co-workers and friends conducting fundraising events to benefit the IFOPA.

Activities include: administrative support, customer service, and fundraising and marketing support. This position also assists the Executive Director in national fundraising programs (e.g. vehicle donation and percent of sales programs) and national fundraising appeals (e.g. #GivingTuesday and FOP Awareness Day).

This position reports to the Executive Director and is also responsible for developing and maintaining fundraising department budgets.  Status: Permanent/Full Time.

Essential Job Functions:
Grow and support fundraising events initiated by FOP families, including support of registration and donation processing, event marketing, and reporting
Manage, promote and grow Team#cureFOP, IFOPA’s Do It Yourself (DIY) fundraising program
Support existing national fundraising activities
Identify new national fundraising opportunities, including research of service providers, contract negotiation and program marketing and support
Assist with strategy and support for national fundraising appeals
Work with other IFOPA staff to ensure that fundraising activities are marketed through the IFOPA website, print materials, electronic newsletters and social channels
Assist with database conversion to Salsa CRM and help maintain Salsa to assure successful executive of fundraising activities
Work with the Executive Director and Donor Relations & Administrative Coordinator to develop and launch a donor stewardship program
Perform other duties as assigned

Skills and Specifications:
Knowledge and experience in nonprofit fundraising, primarily events, online fundraising and appeals
Ability to develop and executive marketing strategy, especially online marketing
Practice exemplary customer service and possess strong interpersonal skills, with ability to meet and deal with a variety of individuals, exercising tact and mature judgment
Demonstrate respect and sensitivity to people from diverse backgrounds
Ability to perform work and accomplish tasks in a fast-paced environment; often including multi-tasking to complete assignments
Ability to work independently in a virtual office environment
Ability to communicate effectively for the purpose of providing instructions, completing forms and applications, obtaining and conveying information
Organizational skills to assure timely and accurate submission of reports and budgets

Education and Qualifications
Prefer a Bachelor’s Degree or equivalent work experience
Minimum of two (2) years successful fundraising experience
Must have ability to represent IFOPA in a professional manner
Must have ability to maintain effective working relationships with Executive Director, staff, family members, fundraisers and others in the FOP community
Must have a willingness to work flexible hours and travel to various national events

How to Apply

Send your resume along with a cover letter and salary requirements to Michelle Davis, Executive Director, at

Application website:

Kerry O'Connor
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